💰 April Bonus: Earn a $15 Bonus Donation for Parish Resource Center 💸

Help The XLH Network, Inc.

Every purchase from great stores helps The XLH Network, Inc..
An iGive member has listed this organization:

The XLH Network, Inc.

Albany, New York

Cause Description:
XLH (short for X-Linked Hypophosphatemia) is a rare genetic disorder affecting 1 in 20,000 people worldwide causing rickets in children and osteomalacia in adults. It is still known by some as Vitamin D Resistant Rickets and is sometimes referred to as Familial Hypophosphatemia. This disorder can be passed down through families on a defective dominant X-Linked gene called PHEX, but new families can be affected as well due to spontaneous genetic mutations upon conception. Most with XLH will develop rickets in childhood, but some only exhibit low phosphorus in their blood. However, if their hypophosphatemia (low phosphorus in the blood) is caused by a defective PHEX gene, then they can pass it down to their offspring with the same or a greater severity. There is a wide variety in degree of severity even within the same family. The XLH Network began in 1996, incorporated as a not-for-profit corporation in 2005, and was also approved by the IRS that year as a 501(c)(3) charity. The organization provides both a public and a members-only website and a listserv discussion group for affected members. These provide a resource for information and emotional support for individuals and families affected by XLH and similar disorders of phosphate wasting, including those with TIO (Tumor-Induced Osteomalacia) which isn't hereditary but causes the same symptoms and is treated the same if the difficult-to-find tumor causing the problem cannot be found and removed. There is no cure for XLH, only a treatment, but very few physicians know about XLH (or these other disorders) and it often goes undiagnosed, misdiagnosed, and/or inappropriately treated. The XLH Network website at www.xlhnetwork.org provides a wealth of information on the subject. The XLH Network, Inc. aims to raise awareness about this little understood condition, both among the public and the medical and dental community, including where to find information on current treatment options. Our listserv currently connects over 1,000 families and individuals affected by these disorders in nearly 50 countries around the world, and is also open to interested professionals dedicated to understanding in terms of support, research and developing new treatments.

To support The XLH Network, Inc. with a free iGive account, click here!

Fundraising for The XLH Network, Inc. has never been easier. Up to 26% of each purchase is donated to them.

iGive.com is the easy way to support The XLH Network, Inc..  Your everyday purchases The XLH Network, Inc. mean serious donations!

Folks just like you have helped list over 35,000 causes and charities at iGive.com, including The XLH Network, Inc..

TEst Previous: Riverside Poly Band | Next: Kitten Krazy, Inc.

Cause Name Location Check Date Check # Amount
Lutheran Church of St. Andrew Silver Spring, MD 20905 Apr 05, 2023 823700 $40.80
Resolution Center of Jefferson and Lewis Counties Watertown, NY 13601 Nov 30, 2023 824820 $36.95
National Mill Dog Rescue Colorado Springs, CO 80908 Jan 31, 2025 825766 $42.44
Humane Society of Huron Valley Ann Arbor, MI 48105 Apr 05, 2023 823865 $36.52
Louisa Humane Society Louisa, VA 23093 Dec 24, 2022 822560 $32.24
River Magic Chorus Huntington, WV 25701 Aug 26, 2022 821933 $29.55
Middle Way House, Inc. Bloomington, IN 47402 Dec 24, 2022 822698 $32.01
Whisketeers' Kitty Kingdom Clovis, NM 88102 Nov 30, 2021 820396 $32.85
Cornelia de Lange Syndrome Foundation Avon, CT 06001 Jun 30, 2023 824334 $51.47
The Cloud Foundation Colorado Springs, CO 80905 Oct 31, 2025 826465 $45.64
Cause Name Address Location Created Date
Girls in the Game 1401 S. Sacramento Dr. Chicago, IL 60623 Nov 11, 2025
Woman with A Plan Ltd 1931 Granville drive Lawrenceville , GA 30043 Oct 17, 2025
Anchor Lutheran Church 7263 West 4th Street Greeley, CO 80634 Jul 16, 2025
Wings of Discovery P.O. Box 664 Agoura Hills, CA 91376-0664 Sep 12, 2025
Geaux Wild Rehab 42440 South Range Road HAMMOND, LA 70403 Sep 18, 2025
PTHA Charities Inc. PO Box 300 Bensalem, PA 19020 Dec 26, 2025
Kilombo Academic and Cultural Institute 6133 Redan Road Lithonia Lithonia, GA 30058 Oct 17, 2025
GOFORTH FOUNDATION 496 N 1290 E AMERICAN FORK, UT 84003-4037 Apr 21, 2025
Hearty Paws Great Dane Rescue 4108 SW Green Oaks Blvd Box 170182 Arlington, TX 76017 Jan 27, 2026
Sashabaw Middle School PTO 5565 Pine Knob Lane Clarkston, MI 48346 Nov 05, 2025