💰 April Bonus:

iGive automatically helps your favorite cause, every time you shop.

We'll donate an extra $15
bonus to your cause when
you make your first
purchase.

Choose or list your cause & they'll earn money for free!

💸

Help The XLH Network, Inc.

Every purchase from great stores helps The XLH Network, Inc..
An iGive member has listed this organization:

The XLH Network, Inc.

Albany, New York

Cause Description:
XLH (short for X-Linked Hypophosphatemia) is a rare genetic disorder affecting 1 in 20,000 people worldwide causing rickets in children and osteomalacia in adults. It is still known by some as Vitamin D Resistant Rickets and is sometimes referred to as Familial Hypophosphatemia. This disorder can be passed down through families on a defective dominant X-Linked gene called PHEX, but new families can be affected as well due to spontaneous genetic mutations upon conception. Most with XLH will develop rickets in childhood, but some only exhibit low phosphorus in their blood. However, if their hypophosphatemia (low phosphorus in the blood) is caused by a defective PHEX gene, then they can pass it down to their offspring with the same or a greater severity. There is a wide variety in degree of severity even within the same family. The XLH Network began in 1996, incorporated as a not-for-profit corporation in 2005, and was also approved by the IRS that year as a 501(c)(3) charity. The organization provides both a public and a members-only website and a listserv discussion group for affected members. These provide a resource for information and emotional support for individuals and families affected by XLH and similar disorders of phosphate wasting, including those with TIO (Tumor-Induced Osteomalacia) which isn't hereditary but causes the same symptoms and is treated the same if the difficult-to-find tumor causing the problem cannot be found and removed. There is no cure for XLH, only a treatment, but very few physicians know about XLH (or these other disorders) and it often goes undiagnosed, misdiagnosed, and/or inappropriately treated. The XLH Network website at www.xlhnetwork.org provides a wealth of information on the subject. The XLH Network, Inc. aims to raise awareness about this little understood condition, both among the public and the medical and dental community, including where to find information on current treatment options. Our listserv currently connects over 1,000 families and individuals affected by these disorders in nearly 50 countries around the world, and is also open to interested professionals dedicated to understanding in terms of support, research and developing new treatments.

To support The XLH Network, Inc. with a free iGive account, click here!

Fundraising for The XLH Network, Inc. has never been easier. Up to 26% of each purchase is donated to them.

iGive.com is the easy way to support The XLH Network, Inc..  Your everyday purchases The XLH Network, Inc. mean serious donations!

Folks just like you have helped list over 35,000 causes and charities at iGive.com, including The XLH Network, Inc..

TEst Previous: Riverside Poly Band | Next: Kitten Krazy, Inc.

Cause Name Location Check Date Check # Amount
Compassion Radio Orange, CA 92859-0700 Feb 28, 2022 821402 $25.89
Montessori School of Duluth Duluth, MN 55803 Jan 31, 2022 820935 $44.32
For Pets' Sake Humane Society Cortez, CO 81321 Nov 30, 2023 825011 $29.63
Providence Animal Center Media, PA 19063 Dec 24, 2022 822512 $26.22
ICS-Immanuel Community Services Seattle, WA 98109-5427 Dec 24, 2022 822942 $31.31
Bay State Trail Riders Association Douglas, MA 01516 Sep 30, 2025 825855 $28.34
Satchel's Last Resort Sarasota, FL 34241 Jan 31, 2024 825181 $38.86
Suncoast House Rabbit Rescue Holiday, FL 34691 Aug 31, 2021 819050 $6.21
Delaware Valley Humane Society Sidney, NY 13838 Dec 31, 2021 820500 $27.03
Keller's Cause North East, MD 21901 Feb 28, 2022 821169 $25.35
Cause Name Address Location Created Date
Charisma's Heart 1968 S. Coast Hwy Laguna Beach CA, CA 92651 Mar 31, 2026
Theodore Roosevelt Association P.O. Box 719 Oyster Bay , NY 11771 Sep 15, 2025
Roots Community Health Centre Society 8630 120 Street Surrey, BC V3W 3N6 Nov 22, 2025
Moms First 119 West 24th St New York, NY 10011 Oct 16, 2025
B.P.O.E. Jamesburg Elks # 2180 74 West Railroad Avenue Jamesburg, NJ 08831 Feb 16, 2026
PTHA Charities Inc. PO Box 300 Bensalem, PA 19020 Dec 26, 2025
Kosmics Exotics Reptile rescue 2736 Fields Ave SE Palm Bay, FL 32909 Jul 09, 2025
Nurture and Nature Childrens Center 171 Exeter Rd #8 Newfields, NH 03856 Jul 30, 2025
Benjamin Jepson Magnet School 15 Tillert Court New Haven, CT 06513 Aug 20, 2025
New Beginning Orphanages International P.O. BOX 740371 Dallas, TX 75374 Dec 11, 2025